Out Of Sight

Hi all,
we spent the day at the John Radcliffe Hospital today and had a number of appointments. The first was neurology. They are happy with the anti-convulsive that she is on and that she is not having seizures now, so we will continue with that but on a larger night time dose rather than day time which will hopefully alleviate the tiredness in the day.
Then we saw the consultant from the gastroenterology dept as she had had a reaction while on the anti reflux drugs. He looked for other reasons for her sickness and diarrhea and wants us to try again with the same capsules as Immi was on antibiotics for an infected insect bite at the same time, and then we will have another chat after a couple of weeks.
The biggest appointment was the follow up with the psychiatrist. She showed me the results for the testing and it showed very strongly that she has ADHD. The psychiatrist however believes that this is not the whole story _due to some other behaviours that Imogen is diplaying - and wants to refer her to another psychiatric dept for more assessment as well as guidance on how to manage the ADHD.
So Immi's run down now looks like this: Dystonia, Epilepsy, ADHD and Reflux.
We now have to do a lot of thinking and praying about the future and whether we can realistically meet her needs longterm in KG, now throwing into the equation the need for psychiatric help. On the flip side, school in KG may well meet her needs better than mainstream school here in the UK, so we really need wisdom.
Thanks for all your prayer,
love,
Karen for us all
xxxx